The Obvious Question

A new podcast

Christopher Shannon regularly shares his original poetry at OneMic, and tonight he grapples with pain, strength and his place in the world.

Christopher Shannon regularly shares his original poetry at OneMic, and tonight he grapples with pain, strength and his place in the world.

Rebecca Smith / KBIA

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What's wrong with you?

“Pain may be my constant companion since the day I was born.” – Christopher Shannon

Since last season, Madi has found out that she is an ever “rare-er” breed of unicorn, as she got a newer and more correct diagnosis in 2019 that – for a while – shook her sense of identity. Ullrich congenital muscular dystrophy.

In this episode, Madi sits down with Christopher Shannon who has a different, but similarly rare collagen disorder. They spoke about some of the ways the medical system interacted with them as kids, about the sometimes-cruel nature of hope and how they deal with the difficulties that come along with these rare disease diagnoses.

Credits:

Hosts: Madison Lawson, Rebecca Smith

Producer: Alec Stutson

Supervising Producers: Aaron Hay, Rebecca Smith

Managing Editor: Ryan Famuliner

Online and Social: Nathan Lawrence

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